Crohns and Colitis
Resources - Medical
Helping patients, families, and healthcare providers integrate dietary therapy as treatment for Inflammatory Bowel Disease.
Palm Beach Children's Hospital GI
Dr. Sara Karjoo, M.D.
Procedure preparation for your hospital visit
Education
Information on Ally's Act bathroom use in schools.
Information on IBD and a free book on living with IBD for kids
Information for the whole family on IBD
A nutrition guide for IBD
Information on IBD and a book / podcast by a GI doctor
Information on proper diet
Information for teens
Teen guide
Activity book for kids
Information in spanish
Information for parents
Story about a crohn's patient
Information about crohn's
Information on treating crohn's
Resource center, track your flares, note your eating, log your meds
Information about UC treatments and diagnosis as well as a symptom tracker
Resources from the Crohn's and Colitis Foundation of America
Information and common emotional responses from having a child with IBD
Website for parents that provides information and tips on how to help your child cope with having an ostomy bag, going back to school, and helping to take care of it
Create you own profile and connect with patients that have a child with UC or Crohn's on the forum, connect with a specialist, and sign up for the PowerOf2 program
Support
Support website for teens with IBD
Handbook for parents and kids
Information for teens transition to adult care
Information to support oteomates and caregivers
Support video for kids
Directory to find a nutritionist
Crohn's support forum for adults
Parent & adult online support group
Support blog for college students
Information for kids considering college with chronic illness
Online community to help you adjust and transition to college with Crohn's or UC
Tips and articles for going to college with Crohn's or UC (talking to professors, nutrition, living away from home, etc.)
Online support network and forum to post questions/answers and express feelings and frustrations with IBD
Online community where you can write your own or read other's personal stories about having IBD, join a discussion board, or
An ostomy support community that connects patients, family, friends, and caregivers. You can participate in forums and discussions, or even post questions of your own to have answered
"To empower girls and women with inflammatory bowel disease and ostomies to share their stories of confidence t promote self-esteem"
Support information for teens with ostomies
South Florida local Crohn's and Colitis Foundation, helpful information, events, and support groups
Community forum where you can read or post questions and concerns regarding medicine, diet, lifestyle, etc.
Peer to peer support
Forums where you can search and post about Crohn's, UC, or colostomy bags and get helpful information and tips from others
Video of two teen girls with ulcerative colitis
Facebook support group
Camps & Activities
San Francisco camp for kids with IBD
San Diego camp for kids with IBD
Nationwide camps for Crohn's and Colitis patients
Year round retreat for campers and their families offering expert medical care in a fun camp environment
United Funding
Insurance for patients with chrons and colitis
Patient assistance program that helps crohn's patients with their medications
Events
Events at Palm Beach Chikdrens Hospital
Clothing and accessories for men, women, and children with Crohn's and Colitis
C & S ostomy pouch covers
A Koolostomy Pouch Cover is a product that will assist the ostomate with eliminating moisture and heat associated with wearing an ostomy appliance
Adaptive clothing for patients
This foundation is dedicated to the distribution of Astronaut puppets at no charge to children all over the world with bladder, bowel, and intestinal diversions
Stoma information and products
Apps
Records bowel movements using a bristol stool scale using volume, time, and photos
A smartphone app you can download to help you locate the nearest bathroom
Over one million public bathrooms mapped and rated
Tracks GI symptoms and pain levels, log meals, stress patterns and customs symptoms. Can also talk to other patients in real time
Tracker from hospital for sick children that tracks all symptoms of IBD appetitive notes and bathroom visits
Family organization app for those caring for someone with a chronic illness